Katie Reginato Cascamo

• Co-led a global public-private partnership addressing unmet neonatal therapeutic needs; developed communication frameworks and consensus strategies with regulators (FDA), academic researchers, pharmaceutical partners, and family advocacy organizations across nine countries.
• Advanced regulatory science by supporting transparent, parent-informed clinical trial communication; reviewed pre-publication neonatal research on adverse event severity, blood pressure factors, and the culture of research communication in NICUs.
• Served as Parent Stakeholder on the Pain Workgroup, contributing lived caregiver perspective to the development of consensus standards for neonatal pain assessment and management.
• Directed a strategic social media initiative elevating awareness of neonatal clinical trials and improving multi-stakeholder engagement.

• Strengthened organizational infrastructure by developing clear volunteer job descriptions, governance policies, and onboarding processes to support board effectiveness.
• Supported national certification standards elevating neonatal therapy practice and professional development across care settings.

• Advanced policy priorities including paid family leave and maternal mental health access through legislative advocacy, coalition-building, and public education campaigns.
• Contributed to policy frameworks integrating maternal mental health services across healthcare systems, with emphasis on underserved communities.

• Co-created leadership capacity among NICU Parent Leaders through collaborative training, mentorship, and shared learning grounded in systems thinking and community-based participatory research.
• Influenced national NICU policy, research priorities, and standards of care by amplifying family lived experience and facilitating parent-expert partnerships.

• Co-developed culturally responsive fundraising strategies and global outreach to support equitable access to individualized developmental care for premature and medically fragile infants.
• Created a 30-minute educational video linking servant-leadership principles with the NIDCAP model of care; published a peer-reviewed article in Developmental Observer.

• Serving on the governing board, contributing leadership, governance oversight, and strategic direction in support of the organization's mission to serve premature infant families and advance neonatal advocacy.

• Participated in advancing family-centered care principles in healthcare settings; supporting collaborative initiatives that strengthen the integration of patient and family perspectives into care delivery and systems improvement.

• Contributed to consensus-based, collaborative workgroups embedding patient and family-centered care (PFCC) principles into organizational policies and healthcare delivery systems.
• Co-developed tools, strategies, and training programs empowering healthcare teams to incorporate patient and family voices into clinical decision-making.

• Promoted patient-centered research by advocating for the integration of patient and family perspectives into study design, outcome measures, and healthcare decision-making.
• Participated in national forums advancing the inclusion of diverse patient voices — particularly from underserved communities — in health research dissemination and policy.

A professional consulting role of substantial scope and responsibility, encompassing organizational strategy, participatory action research, and systems-level design.

• Led a Participatory Action Learning & Action Research (PALAR) study, "A Study Identifying Ways of Building Credibility Between a Non-Profit and a Neonatal Intensive Care Unit," addressing a persistent gap in healthcare legitimacy for parent leadership.
• Findings revealed that credibility grows from four core capacities — trustworthiness, boundary clarity, narrative competence, and systems awareness — reshaping Hand to Hold's national engagement model; this framework was subsequently adopted globally and became the catalyst for pursuing doctoral research to extend the work.
• Conducted SWOT and alignment analyses, co-developed organizational growth plans and training programs, and implemented data feedback loops to drive continuous improvement.
• Developed strategic plans for organizational growth; designed volunteer onboarding and training systems to enhance service delivery and family engagement.

• Advanced family-focused health and education policy priorities — including maternal health equity, paid family leave, and access to mental health services — through strategic advocacy, Hill visits, and national awareness campaigns.
• Co-led planning and facilitation for MomCongress Day on the Hill (2022 and 2023).

• Drew on knowledge gained through conferences and professional convenings to raise public awareness of perinatal mood and anxiety disorders (PMADs), helping parents recognize symptoms and locate support resources.
• Presented at PSI's "Perinatal Mood Disorders: Components of Care" Certificate of Completion Program (October 2019).

• Secured a $266K grant expanding services for families of children with disabilities.
• Developed fundraising strategies, community engagement plans, and partnership initiatives strengthening organizational reach and impact for a parent-led nonprofit.

• Co-designed evidence-informed, parent-focused communication strategies for RSV Synagis vaccines, prioritizing clarity and accessibility.
• Developed parent-centered educational materials and outreach campaigns to strengthen vaccine understanding and trust among diverse parent communities.

• Participated digitally and through virtual events in grassroots national campaigns advancing maternal health equity, paid family leave, product safety, and economic fairness.

• Featured with her prematurely born son on the 5 o'clock news (January and November 2010) and in a fundraising mailer reaching 100,000 households.
• Spoke at a formal fundraising event (October 2010) on the importance of private rooms for families traveling long distances to reach the NICU.
• Collaborated with marketing teams to produce high-visibility campaigns, strengthening community engagement and donor contributions toward a 13-room NICU expansion.

• Served on the Board of Directors of NAWBO San Luis Obispo, guiding chapter strategy and programming to advance the economic empowerment of local women business owners.

• Participated in a national organization advancing equity for women and girls through advocacy, education, and research.

• Engaged with culinary professionals and fellow enthusiasts to support local appreciation of the gastronomic arts.

• Engaged for four years in this initiative hosted through Gonzaga's School of Leadership Studies, applying Presencing Institute frameworks — including Theory U and related awareness-based practices developed by Otto Scharmer — to deepen leadership awareness.

• Volunteered across two distinct periods to collect and organize toy donations, helping bring holiday joy to local children in need.

• Sustains a personal contemplative practice rooted in the Rule of Saint Benedict, in spiritual communion with the monastic community.

• Achieved the Advanced Toastmaster designation and served two years on the Board of Directors.

• Participated as a parent volunteer, supporting school programming and family-educator connection.

• Gained in-depth exposure to regional civic institutions and built lasting relationships with fellow community leaders.

• Served three years helping shape parish priorities and strengthen communication between the congregation and parish leadership.

• Led a team within a graduate leadership development initiative examining resilience, hardiness, and adaptive capacity.

• Served four years on the Board of Directors, supporting governance and oversight of services for survivors of domestic violence and sexual assault.

• Deepened understanding of regional civic issues and strengthened engagement with Klamath County's decision-making processes.